I much prefer writing books to marketing them, but sometimes this marketing business leads to very pleasant discoveries, such as Scott Jones’s podcast Give and Take. I hadn’t been aware of it until Scott invited me to discuss Strange Beauty, and now I am, and have a stack of great conversations to listen to as I conduct my summer relays back and forth from Felix’s school to the girls camp… I loved doing this interview, and not only because I got to talk about Jason and my first date, but also because Scott immediately got one of the main points of my book, which is that, yes, Felix is disabled, but so are we all. In Scott’s words, “it’s about coming to accept the nature of human limitations.” Click here to listen!
Thank you Dame Magazine, for publishing my essay on the Trump administration and GOP’s campaign to decimate the health and well being of our country. And here’s an illustration to go with it, though Dame’s is good, too.
Ours is the time of fidget spinners,
a-whizz and glittering on palms and fingertips,
of Russian hacking, of polar bears patched with brown
merging into grizzlies in a supple move to stay relevant and alive,
as ice caps crack and ages melt,
heaving cascades iridescent in the sun,
surging past whirlpools of trash and lost manatees.
It is the time of construed tans from plug-in suns,
of super villains in gilt towers, of men as jerky as marionettes
attacking one another in the subway, their curses vile and ancient,
Of quiet folks in the next car, bobbing along,
making room for each other.
It is the time of ancestors in red satin jackets helping me to
parry and thrust, of balance beams and forgetfulness.
It is the time of trees that bloom and sway even as facts are
trampled and the May wind blows cold.
When the good people at Cerebral Palsy Foundation asked if I’d host a pizza party to promote last night’s Oscars party episode of Speechless, I was a little uneasy, my inner punk rock voice piping up, warning me against becoming a corporate tool. But I watch the show myself, and enjoy it immensely, as do my daughters, who appreciate not only the hilarity of Minnie Driver as the maniac disability advocate mom, but the intricate and well drawn social dynamics between the siblings. And I do appreciate ABC for airing a raw and irreverent comedy about a family that looks a lot like ours on prime time TV. And, not the least importantly, I do like a party. So I said yes.
My directions were this: I would get a box of tee shirts and have my guests wear them and I would take pictures of them in their Speechless gear watching the Oscars party episode and “live blog” about it. What happened is that the tee shirts ended up in a UPS depot in Long Island and we couldn’t watch the Oscars episode due to technical difficulties. So I dutifully taped the Oscars poster, which did arrive, to the wall, and we pretended to watch that episode while really watching the pilot, which proved to be such a hit that we watched the Alpaca episode, too.
This picture is probably the best of my promotional attempts: pizza, smiling girls, glossy poster of Jimmy Kimmel.
But how do you “live blog” once you start kicking back with your friends and drinking a glass or two of wine? Most of my pictures looked like this:
Feeling my distinct lack of promotional savoir faire, I thought well, I’ll just get the kids to explain why they liked Speechless. Their words will be better than mine anyway. My daughter’s friend Amelia gamely stepped up to my i-phone and spoke about how funny Speechless was, and how it showed that “different” wasn’t really that “different” Her words and delivery were perfect. But I didn’t capture any of it because I had pressed the “photo” button instead of “video.”
Oh well. We will watch the Oscars episode tonight. And in spite of my goofs, I count the night as a success. Not only did we have fun, but also one of my guests texted me afterwards saying that her son, who is on medication to help him with his own language difficulties, looked up Speechless the moment they got home and started to watch.
One of the pleasures that comes from having started Extreme Kids is that every now and then, some optimistic young woman starting her own project will contact me and ask for my advice or input on what she wants to do. In this way, I have met an array of people who cheer me with their energy and commitment.
The latest person I have met in this manner, Marlene Jennings, wasn’t asking for advice, but an interview. She’s started a web project called Make Your Voice Matter, in which she talks to people whose work is aimed at ramping up caring, openness, and creativity in our society. Marlene’s idea is that we can all birth worthy projects of our own, we just sometimes need a little inspiration. Here she is, interviewing me, for the third episode of her show. Good luck Marlene!
Hey there, Mr. Liar in Chief,
I’m not miring in no grief,
not on account of you.
Go ahead, plot your Reichstag fires,
Poison the air with sordid hires.
Your suntan is fake,
your words a mistake.
You think you got power,
but it will be gone in an hour.
All you’ve got is bling,
I’ve got Dr. King.
A good weekend spent snuggling with Felix in New Hampshire, crunching through the snow on an early morning walk, evading all traffic on the drive back to Brooklyn, which translated into time to vacuum the house AND
make art with Happy. I borrowed one of her signature phrases for this. We’re going to turn it into postcards to send to those folks in DC…
My friends tell me that we are living in scary times. Many of them are having difficulty sleeping. The reasons for their fright are real: Around the nation, attacks on minorities and other hate crimes are on the rise. In Washington, D.C., people who have proven themselves to be without conscience will soon be assuming seats of power. A great number of Americans appear to be in the grips of mass delusion.
But fear is not the answer. Fear shoots up the blood pressure. It leads you to lose your cool and your power of discernment. It can introduce a state of paralysis or panic-induced violence. Fear plays into Trump’s hands. If you are petrified, or sputtering in rage, you won’t be so good at fighting the forces unleashed in his name. Your resistance will be far more effective if you are mobile and flexible. Rather than stoke fear, let us stoke courage.
A simple way to do this is to be thoughtful about language. Compare your body’s responses to the directives: “Be frightened” and “Be wary.” Consider the effect of talking about “a dangerous situation” rather than a “scary” one. Use words that bring on alertness, nimbleness, calmness and awareness.
And while you’re at it, don’t overdose on speculative news. Be aware of current events, but also be aware of the plants growing around you, the song the child beside you is singing, the taste of an apple. Having been a student of history, I usually balance today’s political happenings with those of the past. Alas, the research I’m doing these days is for a novel that takes place in 1938 Vienna, so my historical reading is looking all too contemporary. Still, it is interesting to consider the way history spirals around, revisiting itself in different guises. The long view encourages me. The knowledge that people have been in similarly dark situations before, as they will again. We are not alone. We are part of a struggle that’s been going on for a very long time.
Right after the election, my friend Annie suggested a bunch of us bolster ourselves with a tattoo. When I was eighteen, I had a Hopi symbol of the sun tattooed on my arm, so as to carry a bit of the desert with me when I was surrounded by the concrete of New York City. I love that tattoo and had not, until Annie made her suggestion, seen the need for another. But as soon as she planted the idea in my head, I wanted a tree. I spent the next couple of weeks remembering the various trees that had gotten me through difficult times in my life, and drew an amalgam of them. Here it is, freshly rising from my flesh:
I love trees for their vibe, their beauty, their endurance, their mobility even as they are rooted to the ground. Jason, who likes to keep up on science news, told me that the genome of a gingko tree is three times the size of the genome of a human being. This is probably because they’ve been around so long, adapting to wildly different climates and conditions. Scientists think that they first sprung up in the Permian Age, back when the continents were one big landmass, and crested dinosaurs left footprints in the mud. Now they spring from neat rectangles of dirt, geometric breaks in the sidewalk of my Brooklyn block. In the spring, their fruit drops to the pavement, emitting a smell of sweat and decay. Soon after, stick thin old ladies appear. Speaking a language that I do not understand, they squat down and scoop the berries into plastic bags, harvesting them.
Jason told me that the adaptability of the gingko trees enabled them to withstand the atomic bomb. Checking up on this, I learned that not only gingkos, but 32 other species lived through the nuclear bombing of Hiroshima and Nagasaki. 170 individual trees, among them oleander, eucalyptus, chinaberry, black locust, weeping willow, fig tree, and Japanese black pine managed to keep growing through all that destruction. The Japanese named these trees the hibakujumoku, translated as “survivor trees” or “a-bombed trees.” Each one is marked with a plaque that tells visitors how far they were from the explosion. The tree closest to the Hiroshima blast was a weeping willow, which stood 370 meters from the hypocenter. Its trunk was destroyed, but its roots survived, from which new buds sprouted.
I remember being seventeen, in 1986, nervously flipping through albums in the C section of Melody Records, right off Dupont Circle, in Washington, D.C.. I loved music, but I was not immune to the terror of others’ opinions, and the guy slumping behind the cash register looked intimidatingly cool. I did not know if Leonard Cohen was cool or not, but I’d heard his song “Dance Me to the End of Love,” and was intrigued. There were no albums with this song on it, but there was Songs from a Room, with an admirably minimalist cover. So steeling myself for the cashier’s judgment, I bravely purchased it. I was rewarded when I got home and heard “Bird On A Wire” for the first time. The way those words were arranged. The tonality, jive, pain and resistance brought together with that raspy, sensual voice. I was instantly hooked, and have been a Leonard Cohen junkie since then.
Learning of Leonard Cohen’s death in the midst of my election night grief almost lightened my mood. He was a mordant wit in his life, why not carry through with it to the end? What a perfect moment to bow out. The last record he made, and released this summer, also exhibits his impeccable timing. Its title cut weaves disco, a synagogue choir, and his octogenarian voice stating simply: “You want it darker. We kill the flame.”
Leonard Cohen knew how to deal with the dark. He dove into it, investigated it, and sprawled about within it, enjoying its fruits. The face he showed us was that of a man neither afraid of the darkness within him or the darkness without. He must have had fears. He was human. But he kept them at bay, or perhaps he learned to transform them into songs that worked as a communion for his millions of fans. Perhaps he took his darkness and turned it into music. Isn’t what we’re supposed to do—whistle in the dark?
Isn’t that what we should be doing now, in this mess that Mr. Cohen left behind? We should not turn our faces from the dark. We should not pretend that it’s not there. The political ground has shifted dramatically and dangerously. We still have an unusually humane and decent President, but come January, the United States will be led by an unstable and vindictive man who has unleashed waves of violence with his venomous rhetoric. Around the nation, incidents of white thugs attacking minorities are on the rise; even in the 99% Democratic haven of Brooklyn where I live, at a French cafe where I often drink an afternoon cup of coffee, a 49 year-old woman, bemoaning the results of the election with her friend, was punched in the face by a Trump supporter from another table. In the halls of power, white supremacists like Steve Bannon grin at the camera.
The prospect of a far right executive branch, coupled with a Republican Congress, and let’s not even mention the Supreme Court, has affected many of us so viscerally that it has been hard to do anything for the past week except hug one’s friends, cry, crawl into bed and/or drink large doses of whiskey. And yet, even in our sorrow, we are seeing the beginning of a nation-wide resistance. Since the election, The American Civil Liberties Union has received the greatest surge of support in its one hundred year history; over 20,000 people have donated to Planned Parenthood in Vice President-elect Mike Pence’s name. Muslim and Jewish organizations are coming together to renounce Trump’s plan to register Muslims. These are dark days, but we are beginning to whistle.
There are many ways to whistle and many ways to resist Trump, but at the bottom, it boils down to persistence and love. That means not giving up, and being kind to our family, our friends and our neighbors. All of them. Love kept inside doesn’t do much good and often sours. Love needs to be exposed and shared through songs, through art, through touch, through thoughtful protest and intervention. We hold each other up. We make beauty while we are here. Trump only wins if we stop doing this.
Want more direction? I have found the following links to be helpful: